Calidad de vida en pacientes con Epilepsia Refractaria controlados en un policlínico especializado en un Hospital Pediátrico
Dra. Rocío Cortés Zepeda ¹, Dra. Ximena Varela Estrada ², Dr. Felipe Castro Villablanca ^3
1 Profesor  Instructor, Dpto. Pediatría y Cirugía Infantil Norte, Universidad de Chile. Unidad de Neurología, Hospital Roberto del Río.
² Profesor  Instructor, Dpto. Pediatría y Cirugía Infantil Norte, Universidad de Chile. Unidad de Neurología, Hospital Roberto del Río.
Dpto. de Pediatría, Clínica Las Condes.
³ Profesor  Instructor, Dpto. Pediatría y Cirugía Infantil Norte, Unidad de Neurología, Hospital Roberto del Río

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Introduction: Epilepsy affects the quality of life, both in seizure frequency as factors related to care, treatment, complications, etc. There are scales to evaluate this parameter, like Quality of Life in Children with Epilepsy (CAVE).

Objectives: To evaluate quality of Life in children with Refractory Epilepsy (RE), controlled in a specialized polyclinic. To determine whether this specialized polyclinic care significantly improves quality of life.

Patients and Methods: Patients were recruited from 0 to 18 years, with ER and in control in specialized polyclinic. They were surveyed with CAVE on 2 occasions in an 11 month period.

Results: Of the 35 patients in the first evaluation, 27 were attending to school, 20 had self-classified as poor or very poor, 20 assessed perceived frequency of seizures as very bad and poor, in contrast to general opinion of quality of life, where 22 rated in good or very good. Monitoring, 2 began scholar assistance, with significant improvement in perceived intensity of crisis, no differences in other items.

Discussion: We evaluate the impact of an intervention (specialized polyclinic) on Quality of Life in RE with a significantly improvement in intensity of crisis perception.  It is necessary a long termfollow-up.